Recently Amina's mommy posted about her wondering how she is going to feel going to her first WS gathering. It brought back all the memories of our first one, it was a picnic in New Braufels Texas at a gorgeous park. I
cried from Katy to New Braufels and wondered out loud if we should still go. My husband poor thing tried to be so supportive. He was gung ho to go and enjoy the day, I on the other hand fretted about, how many others were going to be as young as she was, what the older ones were going to look like, how was I going to react to those that were more severe, what to say to other parents, how many questions could I ask without offending. I was terrified for my little girl and worse my emotions. Looking back it was a great experience. Everyone was so inviting and they totally understood my questions and even the tears. My husband spoke with a women for over an hour and finally realized she was WS. He thought her daughter was the WS in their family, we were very happy for her and her ability to take care of her family. It made me realize that Lila will be a happy content person and we will give her all the support we can. I have posted a few early photos of Lila to show how she has changed so just like others, I love when people say she looks like my husband, WS is secondary to me. Lila is Lila, similar to others but truely One in a Million (Hannah Montana song), so appropriate.
3 comments:
She is to cute. Noah has alot of ws features but he also looks an awful lot like me when I was little. We waited for a year before we went to our first outing. I did fine until we got in the car to leave. Our 7 year old is vvvvvvvvvery smart and after spending the day with ws children of all ages she asked us if Noah would always have WS. I was thankful I was in the front seat and she couldn't see the tears streeming down my face.
Oh, your experience sounds just like my first experience with meeting other WS families. I am so happy that it was positive for you.
And you are right, Lila is Lila and WS is what she has, not who she is.
Hugs....
Our first ws get together was overwhelming - like you, I wondered how I would handle everything. What an experience - they become family the very first time you meet them. It's amazing the bond we all feel.
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